Clinical warning signs in acute situations in PWS

In PWS, pain, fever and vomiting may be absent or less obvious. Sudden changes in general condition, abdominal distension, respiratory signs or suspected infection must be taken seriously.

In this assessment, each “Yes” answer adds points. Some signs count more because they indicate greater clinical relevance in acute situations in PWS.

Abdomen / gastrointestinal

Abdominal distension or very swollen belly?
Complaint of abdominal pain, abdominal discomfort or a feeling of a “full/bloated stomach”?
Vomiting or nausea?
Significant malaise with no clear explanation?
Refusing to eat or a significant decrease in food intake?
Recent episode of hyperphagia / eating a large amount of food?

Respiratory

Noticed breathing pauses?
Heavy snoring or recent worsening of snoring?
Breathing that is difficult, slower, weaker, or labored?
Excessive drowsiness or less alert than usual?
Significant change in sleep pattern (insomnia, frequent waking, obvious apnea)?
Recent or current respiratory infection?

Infection / temperature

Fever?
Seems sick even without a high fever?
Significant decline in general condition?
Suspected infection with few of the usual symptoms?
Sudden change in behavior or listlessness (prostration)?

Risk context

Severe obesity?
Previous history of sleep apnea / breathing problem?
Currently taking sedative medication?
Recent procedure with sedation / anesthesia?
Caregiver has difficulty interpreting symptoms because there is little complaint of pain?

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This tool is a clinical screening and does not replace a medical evaluation.

Important notice

This app does not replace a medical consultation.
It does not diagnose or recommend treatment or medication.
It is only meant to help the family recognize warning signs and seek the healthcare team before things get worse.